Interrupted Aortic Arch type B, Large VSD, Sub Valvar Aortic Stenosis, Aortic Valvar Stenosis, Dysplastic Pulmonary Valve.
Baby Lagan was diagnosed with Complex Heart Defects in September 2010 during an intrauterine Fetal Medicine Scan at 22 weeks
We were taken to a small counselling room and given our options.
Continue with the pregnancy and hope for a repair,
Continue with the pregnancy and provide palliative care
Terminate the pregnancy.
Lagan was so active we agreed to give her the chance to prove her strength. On the 11th January 2011, Lagan was born in St Mary’s Hospital, Manchester, a brilliant 7lb 5oz. She was whisked away to NICU where she was looked after incredibly well. When we went to visit her we could not believe there was anything wrong she was perfect. But what we didn’t know was along with the complex defects we had been told about, Lagan also had an interrupted aorta type B. We were also told due to the interrupted arch that Lagan had a high chance of having Di-George Syndrome, they said she also presented soft features of this syndrome.
On the 12th January we were told they were going to transfer her by blue light to Alder Hey Children’s Hospital in Liverpool for surgical review. That evening Lagan left the comfort of Saint Mary’s and embarked on her 30 minute journey to Alder Hey Children’s Hospital, Liverpool. I returned back to my room on Maternity and sobbed while we waited desperately to hear that Lagan had arrive safely in Alder Hey and had been transferred on to K2 Ward.